lily update

We made our first trip back to Riley after almost two weeks. Lily had an ultrasound of her leg that has the clot and then we saw the hematologist. Her leg is still a little swollen and has some slower blood flow, so they think the clot is still there. This isn’t really shocking to anyone, but means she’ll be on blood thinners for a while longer. The real bummer is that they mentioned Lily potentially having to stay on the blood thinners for even a year! Sometimes if babies are taken off the blood thinners too early they have the risk of their leg always being slightly bigger than the other. We don’t want an angry teenager with one leg bigger than the other. I am still convinced that my clot leg is still a little bigger…so I understand.

We are adjusting back to “normal” life. Carl goes back to work in a week which will be another adjustment. But we’ve enjoyed easing back into things slowly. Lily is doing really well. She is back to being a pretty good baby with little crying. We think she is starting to track us with her eyes. This is a little slower than normal babies since she was doing it before she got sick, but it is big progress for her now.

Lincoln likes having us all back together. When we are all in the same room he’ll say, “the whole family is together.” And when Lily is crying he says, “sometimes babies cry, mom.” He has always been very sensitive to when babies or kids cry or get hurt, so it’s good that he’s learning to react more calmly. Although occasionally he does still fall to the ground saying, “pick her up mom, pick her up” with his hands over his ears when she cries.

Here are some pictures from the last two weeks…

{lincoln really loves daddy. they get a lot more hang out time these days. most of time it’s great…but not when he yells at me before bed “i want daddy”}

{still working on smiling on cue}

 

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~ by carolynafrost on August 30, 2011.